Just a girl blogging about her life with a chronic illness
Thursday, March 20, 2014
Everything is Changing
So I went to a new specialist yesterday with my mom, because she was concerned I had the same genetic disorder she was diagnosed with recently. Turns out she was right. This doctor completely ruled out me having fibromyalgia and ADD, and diagnosed me with Ehlers-Danlos Syndrome (Hyper mobility type), Postural Orthostatic Tachycardia Syndrome (POTS), and Post Viral Chronic Fatigue syndrome. While most of this shocked me, it also made me feel a little relieved. EDS is a genetic connective tissue disorder caused by a defect in collagen production. Knowing that I have a genetic condition that can be proven gives me a little more validation than fibromyalgia did. Now maybe more people will believe that I am sick and not think im making things up. I will continue to blog (though i will have to change the name) as I learn more about my illness and figure out how to deal with everyday life. Thank you for supporting me and reading my blogs!
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5 comments:
Praying for you.
Looking forward to the new name of your blog. You are an amzing spirit Ellee. and i am sure you will not let EDS define you. Cant wait to read your next post
My Ellee-bellee, you have given God glory in how you have handled all this-for years, up until now. I am proud of you! There are big plans for you and me girlfriend, big plans. He will use this for good. Your Zebra-mommma
Hi Ellee! I've enjoyed working with you in Geometry this year. You are a real trooper, and I am keeping you in my prayers. Love, Mrs. Bowyer
Ellie,
All you have been experiencing has been real. Please know I believe you and your journey is a valid one that we can all encourage you in and pray as you go forward.
Love you sweet spirit.
Ms. Grose
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