Just a girl blogging about her life with a chronic illness

Just a girl blogging about her life with a chronic illness

Thursday, March 20, 2014

Everything is Changing

So I went to a new specialist yesterday with my mom, because she was concerned I had the same genetic disorder she was diagnosed with recently. Turns out she was right. This doctor completely ruled out me having fibromyalgia and ADD, and diagnosed me with Ehlers-Danlos Syndrome (Hyper mobility type), Postural Orthostatic Tachycardia Syndrome (POTS), and Post Viral Chronic Fatigue syndrome. While most of this shocked me, it also made me feel a little relieved. EDS is a genetic connective tissue disorder caused by a defect in collagen production. Knowing that I have a genetic condition that can be proven gives me a little more validation than fibromyalgia did. Now maybe more people will believe that I am sick and not think im making things up. I will continue to blog (though i will have to change the name) as I learn more about my illness and figure out how to deal with everyday life. Thank you for supporting me and reading my blogs!

5 comments:

Pastor Mike said...

Praying for you.

Unknown said...

Looking forward to the new name of your blog. You are an amzing spirit Ellee. and i am sure you will not let EDS define you. Cant wait to read your next post

Joanna said...

My Ellee-bellee, you have given God glory in how you have handled all this-for years, up until now. I am proud of you! There are big plans for you and me girlfriend, big plans. He will use this for good. Your Zebra-mommma

Unknown said...

Hi Ellee! I've enjoyed working with you in Geometry this year. You are a real trooper, and I am keeping you in my prayers. Love, Mrs. Bowyer

Beth said...

Ellie,
All you have been experiencing has been real. Please know I believe you and your journey is a valid one that we can all encourage you in and pray as you go forward.
Love you sweet spirit.
Ms. Grose