Recently I have started to help AFFTER(Advocates for Fibromyalgia Funding, Treatment, Education, and Research) to create a yahoo support group and a Facebook page, mainly focused on Fibromyalgia in Teens and young adults. I am so excited to be able to be in charge of these groups and to start raising awareness and to fund research! If you, or anyone you know has Fibromyalgia, feel free to join our yahoo support group!(linked below). If you would like to help me in my journey to raise awareness and funds to support research for Fibromyalgia, please like and share my facebook page!(also linked below). Thank you guys!
https://www.facebook.com/affteryouth?ref=stream
http://health.groups.yahoo.com/group/AFFTER_YOUTH/
https://www.facebook.com/affteryouth?ref=stream
http://health.groups.yahoo.com/group/AFFTER_YOUTH/
4 comments:
As I was trying to comfort you in your FM flareup late last night my heart cried for the pain and discomfort that you were in. I wished I could do more than just hug you and sit next to you while you suffered. I am so proud of you hanging in there though, and being there for others at the same time!! you mommma
You are such an awesome mamma :)
... and Ellee is an awesome kid!
Ellee, I so relate to what ur going thru. I've had fibro since what seems like forever. Before fibro, I took 3 dance lessons a week, tap, jazz, and ballet. I did gymnasitcs, took drama classes, was in my school chorus, and took art and piano lessons. When I was about 10 years old, I was in fourth grade, I would get home from school and have a snack & take a nap until dinner. My friends would call my house, asking my Mom, "can Michelle come out and play" but my Mom told them I was taking a nap, which to these friends was "weird". I stopped taking so many classes & lessons. I missed a LOT of school & my teachers became suspicious that something was "going on" at home. At one point, when I was 11 yrs old, the school stopped taking "Michelle, was too sick to go to school excuses from my pediatrican & my allergy/asthma doctor". I was forced to go to Boston Children's Hospital in Boston, Mass in 1989. They did tests and blood work on me 5 times a day for 4 days. They asked if my parents were hurting me. They asked me "where does it hurt"? They asked "why do u think u feel sick"? I didn't sleep well back then. I still don't sleep well even though I'm almost 36 years old. When I was 21, I finally got the fibro diagnosis. The doctor gave me muscle relaxers and sleeping pills. These pills kind of helped me at times. Other times, I had to drag myself across the floor of my first apartment until I reached the bathroom & hold onto the wall to get onto the toilet. Thank God, I rarely feel this way now!! I take a cocktail that includes Zyrtec and Singular for allergies/asthma, Nexium for acid reflux, Skelaxin/muscle relaxer, Lyrica/fibro, Cymbalta/depression, a ton of vitamins and supplements, docusate sodium and bisacodyl for my stomache, and Rapaflow for my bladder. Of course there are other pills I take as needed. Even though I'm an adult, I depend on my home health aide to help me with the housework, cooking, and taking me shopping and to various appointments. I see a psychiatrist, 3 therapists, a massage therapist, chiropractor, sometimes acupuncture, and about 7 other doctors, in my attempts to "get well". I feel that in about 4 years, I will be healthy. I will not give up on my life because of fibro, or visual impairment, or ADHD, or auditory processing deficit, or any of the other barriers I face in my life. I know God is looking out for me. Someday the life I have now, will simply be a memory from the past!!
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